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CeASES-ADRD Report Database

Preventing and Treating Dementia: Research Priorities to Accelerate Progress
Alzheimer’s disease and related dementias (AD/ADRD) are a collection of neurodegenerative conditions that can cause cognitive impairment and ultimately lead to the development of clinical dementia. These diseases pose a significant physical, emotional, and financial burden on individuals, families, and communities all around the world. Accelerating the development of effective strategies for preventing and treating AD/ADRD is therefore crucial to address the growing public health crisis posed by dementia and to provide hope to millions of people suffering from these conditions. A committee of the National Academies was convened to assess the current state of research on AD/ADRD and identify research priorities for treating and preventing AD/ADRD.

Preventing and Treating Alzheimer’s Disease and Related Dementias: Promising Research and Opportunities to Accelerate Progress
In response to a request from Congress, the National Institutes of Health asked the National Academies to conduct a study to assess the current state of research on Alzheimers Disease and Related Dementias (AD/ADRD) prevention and treatment, recommend research priorities, and identify strategies for overcoming barriers that impede scientific advancement. The resulting committee held a public workshop in January 2024 to explore promising areas of research that could catalyze scientific breakthroughs or accelerate the translation of discoveries into effective prevention and treatment strategies, as well as to discuss barriers to the advancement of research. The committee final report will be released in December 2024.

NIMHD Minority Health and Health Disparities Research Framework
The NIMHD Minority Health and Health Disparities Research Framework is a multi-dimensional model that depicts a wide array of health determinants relevant to understanding and addressing minority health and health disparities. The framework facilitates assessment of progress, gaps, and opportunities in the NIMHD and NIH minority health and health disparities research portfolios.

NIA Health Disparities Framework
The NIA Health Disparities Research Framework showcases priorities and investments in this important aging research area. This page is designed to serve as a resource for scientists interested in investigating health disparities related to aging. The Framework outlines four key levels of analysis related to disparities research–environmental, sociocultural, behavioral, and biological—with priority focus areas in each level.

Microsimulation: Future Elderly Model
Presentation on microsimulation, which consists of models that capture interactions between multiple programs and policies to create “what if” scenarios to estimate how demographic, behavioral, and policy changes may affect individual and societal outcomes.
Presented by: Bryan Tysinger, Assistant Professor, University of Southern California

USC Aging and Cognition Pilot
Presentation on funding opportunities at the Aging and Cognition Research Program from the two affiliated P30 centers: Center for Advancing Sociodemographic and Economic Study of Alzheimer’s Disease and Related Dementias (CeASES-ADRD) and the USC Alzheimer’s Disease and Alzheimer’s Disease Related Dementias Resource Center for Minority Aging Research (USC AD/ADRD RCMAR).
Presented by: Briana Taylor, Senior Program Administration, USC Schaeffer Center

National Research Summit on Care, Services, and Supports for Persons Living with Dementia and Their Care Partners/Caregivers Report
The 2023 National Research Summit on Care, Services, and Supports for Persons Living with Dementia (PLWD) and Their Care Partners/Caregivers was held virtually on March 20-22, 2023, building on previous summits since 2017. It gathered input from various stakeholders, including PLWD, caregivers, healthcare providers, and researchers. The Summit aimed to identify research gaps and opportunities across eight areas of dementia care and caregiving research, contributing to updates in Alzheimer’s disease research milestones. The Summit Report provides a scientific summary of each session and shares the finalized 2023 Research Gaps and Opportunities.

State Policy & Politics Database (SPPD)
The SPPD contains annual data, from 1980 to 2021, on U.S. state policies and politics that are relevant for population health and aging. Variables in the SPPD span labor and economic policies (e.g., minimum wage, right to work laws), safety net policies (e.g., Medicaid, unemployment insurance), health behavior policies (e.g., opioid prescribing, alcohol tax), and political orientation of states’ legislatures and citizens. The SPPD was created by the NIA P30 Center for Aging and Policy Studies (CAPS).

Gaps and Opportunities for Real-World Data Infrastructure
National Institute on Aging (NIA)
On May 4, 2022, the National Institute on Aging (NIA) convened a panel of subject matter experts to explore gaps and opportunities for real-world data (RWD) infrastructure that supports research and clinical trials for Alzheimer’s Disease and Alzheimer’s Disease and Related Dementias (AD/ADRD). This report provides a detailed account of the workshop, including the five key themes identified by panelists and research gaps and opportunities within each theme.

Reducing the Impact of Dementia in America; A Decadal Survey of the Behavioral and Social Sciences, a report by National Academies of Sciences, Engineering, and Medicine sponsored by US Department of Health and Human Services
Reducing the Impact of Dementia in America assesses the contribution of research in the social and behavioral sciences and identifies a research agenda for the coming decade and recommends ways in which they can be pursued in a coordinated manner to improve the reduce the impact of dementia on individuals, families, and society.

National Research Summit on Care, Services, and Supports for Persons Living with Dementia (PLWD) and Their Caregivers, sponsored by National Institute on Aging
The 2020 National Research Summit on Care, Services, and Supports for Persons Living with Dementia (PLWD) and Their Caregivers brought together individuals with a variety of backgrounds to identify evidence-based programs, strategies, approaches, and other research that can be used to improve the care, services, and supports of people living Alzheimer’s disease and Alzheimer’s disease-related dementias. The resulting list of research gaps and opportunities provide a blueprint for future research.

The Hidden Financial Dimensions of Cognitive Decline and Caregiving, sponsored by Bank of America
“The Hidden Financial Dimensions of Cognitive Decline and Caregiving” — the fourth report in a series developed by The Gerontological Society of America and supported by Bank of America — differentiates Alzheimer’s disease from cognitive decline and other types of dementia, documents the direct and indirect costs of ADRD on affected individuals and those providing largely unpaid care to them, and describes benefits of interventions at the individual, family, community, institutional and organizational, and policy levels. The literature on age- and disease-related cognitive decline is reviewed through the lens of the socio-ecological model (individual, interpersonal, organizational, community, and public policy levels).

Designing Data Platforms for Action and Influence, a joint project of USC Sol Price School of Policy and USC Annenberg School for Communication and Journalism
This report identifies a set of best practices and features that enable data platforms to inform policy and practice to catalyze action towards health equity.

NIH Professional Judgement Budget for Alzheimer’s Disease and Related Dementias Research, Fiscal Year 2024, NIH presents opportunities to accelerate Alzheimer’s and Related Dementias research, including innovations in prevention, treatment, and care research.

Podcasts

Lessons in Lifespan Health, a podcast by the USC Leonard Davis School of Gerontology, Center for Lifespan Health
Lessons in Lifespan Health is about the science and scientists improving how we live and age. The podcast is produced by the USC Leonard Davis School’s communication office with support in part from the Ney Center for Healthspan Science. Highlighted:

Minding Memory – CAPRA’s podcast discusses topics related to dementia research, starting with what is dementia? Co-hosted by Matthew Davis and Donovan Maust, Associate Professors and health services researchers at the University of Michigan.