Patient Centered Diabetes Registry (PCDR)
Principal Investigator: Dana P. Goldman, Ph.D.
With the generous support of InHealth (Institute for Health
Technology Studies), A team of researchers from the Schaeffer Center and
RAND has launched the Patient-Centered Diabetes Registry (PCDR), a
longitudinal data collection effort that combines provider and patient
surveys with clinical health data.
A number of prominent diabetes centers and community clinics from
around the country have been selected for the study. The PCDR will
provide new information on different diabetes therapies related to
glucose monitoring and insulin delivery and patients’ adherence to
treatment. The study will also include analysis of the long-term
consequences for different socio-economic groups. Study measures will be
both clinical and patient-centered so that, ultimately, the findings
will help improve patient health as well as quality of life, workplace
productivity and functional status.